My name is Jaana Tanska, I’m 16 and I live in Adelaide. For the last 6 months I have not been able to walk and they have put it down to ‘unexplained signs and symptoms’. It all started Friday September the 7th, while I was at the royal Adelaide show, I started getting sharp back pain in my lower back. By the time it hit night time I was in agonizing pain, the pain wasn’t going away as days past. On Monday night I slowly started getting tingling in my toes that started working up my right foot, as it kept working up my leg I went to Modbury Hospital on the Wednesday concerning the back pain and the tingling in my right leg. I got to the hospital at 7 am and I was out but 8:20 am. I saw one doctor and he checked me out then sent me home with an outpatient appointment the next day. As my leg kept getting worse I went to the out patient appointment and the doctor referred us to go to woman’s and children’s hospital to see a neurologist. By this time it was Friday by this time my whole right leg was tingling and starting to get numb. On that Friday I had two tests, one blood test and a MRI on my lower back and they both came back fine. I was kept in hospital for the night and I woke up the next morning and it had started in my left leg, and still had sharp pains in my back. I was kept in hospital for 8 days and during that time I had one more test of a nerve conduction that came back normal. After those 8 days, I could only just walk by myself, and on the last day I was in hospital I started getting spasming in both my legs, but we didn’t take much notice to it. When I left the hospital I had follow up appointments with the doctors and physios. After about a month being out the hospital I was just getting worse and got to the point that I couldn’t walk by myself at all. I was then remitted to hospital for a rehab program, I was in hospital for 3 weeks doing physio twice a day, and when I left hospital I could walk suitably by myself. From that time I have had a lot of ups and downs with this condition but I am able to get around on my frame and I am hoping to start using crutches soon and progress from there.
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I am still getting physio each week and having doctors appointments once a month.